The Instability of the Word “Autism” and Its Accompanying Diagnosis | Responding to Amy Lutz

Kate, of Finding Cooper's Voice, was talking with Amy Lutz whose twenty-one year old son, like her own son, is severely autistic. They were discussing how their boys aren't able to advocate for themselves and how they, the parents, have to advocate for them. Amy said she feels that "autism" is a very unstable term [...]

Wearing NEW Clothes?! (Autism and Rigidity)

Elizabeth's most challenging area of behavioral rigidity (difficulty/inability to change or adapt) has always been choosing and wearing clothes. Using specific cups, bowls, and silverware are a close second but CLOTHES are definitely #1. At the age of two, she could not comfortably wear clothing at all. It was a battle every single day. The [...]

Choosing a Narrative | Responding to Kate (Finding Cooper’s Voice)

Kate, of Finding Cooper's Voice, was talking about her family's recent experience at an apple orchard. It was a day of mixed emotions and different challenges and successes for their nine year old autistic son, Cooper. In the video, she gave two narratives about the day. Both were true. She told an upbeat version of [...]

The Sting of Autism “Paper Cuts” | Responding to Kate (Finding Cooper’s Voice)

Kate, of Finding Cooper's Voice, was recently doing an interview with a parent who has a kid on the spectrum. They were talking about all sorts of things, from the other parent's story to how their story compares to Kate's. It was a pretty typical conversation but then something was mentioned that really stood out [...]

Simple Accommodations | Responding to Kate (Finding Cooper’s Voice)

Kate, of Finding Cooper's Voice, was talking about how much accommodations help families like hers (and mine) and how difficult it can be when those accommodations are denied. Simple things like allowing her and her husband to accompany their son to an appointment when right now, because of COVID, the limit is one parent. How [...]

What are High and Low Functioning Autism? (Parenting Kiddos with Asperger’s and PDD-NOS)

Okay, sorry. That title may be a bit misleading. I don’t know what it’s like for other people who are parenting kids on the spectrum, only what autism looks like here with my two. Let me start over, I have five kids. My first, Maggie, has some anxiety and overthinks in a major way but [...]